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Tman
 #1 
Spikes that hit in the night--I've not slept well in two nights and feel like words I can't print here.  Ever since last Monday and that temporary high frequency loss in the rt. ear, both ears have been slap dab crazy.  If it is the thyroid, and I know it can affect tinnitus, I hope they can get me on a medication soon.  I've lost weight hand over fist and continue to do so.  As the weight has melted off me, the ears have worsened.  Seems a substantial connection there.  5'7" wt. 144lbs.  Not much of me left to bury, and bury they will, one more night of that!

I was sleeping so well, but woke up at 2:00a.m. to a loud whistle type tone in my head.  It didn't let up until nearly daylight.  A sudden change like that is impossible to sleep with.  The loudness was unbelievable.

I'm so exhausted the screen nearly looks black to me.  I'm becoming afraid now, something in my chemistry has changed to where sleep is causing tinnitus spikes.  I hope I'm wrong.
winterbridge55
 #2 

Tman,


I take .05 Klonopin at night and I know this has helped me through almost 9 months of t. Maybe you want to consider taking something to help you sleep if you don't already. Klonopin and Xanax are good for tinnitus. My prayers go out to you today.

Tman
 #3 
Hello, Mark-

I've been on lorazepam for a long time, since 2000, and was on Xanax since '93 before that.  For unknown reasons, the Xanax started causing anxiety and panic instead of helping it.  I started it originally for tinnitus control. 
I can check about the Klonopin.  I can't help but think that overactive thyroid may be upping the tinnitus.  Just a thought. 

Someone on another forum said I better get to a Dr. instead of these p.a.'s I'm stuck with.  The weight loss is equally disturbing. 

But thanks so much, Mark, and thanks for those prayers especially.
DrNagler
 #4 
Tman, please do not be upset with me for asking this question.  But for approximately how many years have you been posting on the tinnitus and/or hyperacusis boards about your various complaints?

smn
Tman
 #5 
Many, I'm sure, and I know I should stick to the subject of tinnitus, not other problems.  There are 100's of other health forums out here.

I also need to be seen by a regular M.D. instead of these young upstart p.a.'s, mainly regarding this rapid weight loss.  That's usually not a sign that everything is peachy. 
Thatch
 #6 
im sorry to hear about your situation tman, i too am going through a rough time. I don't know why such a sudden change, but i've had a very significant experience of hearing loss in the R ear. Ive never had a spike or occurance like this.. its very depressing. Its hard adjusting to this reduction in depth perception for sound.
On top of that, the t is reaching new heights, im having extreme difficulty sleeping aswell. I'll lie in bed, with my computer fan running, my xbox fan, my noise generator, and my tv with the sleep timer on just to drown out the ringing so i can fall asleep... but sure enough every night i wake up at around 1-3am, and im up for the night.

The major thing that gets to me, that among all other things that just cuts through me and brings me down like no other.. is the progression. It's never plateaued.. never regressed to a previous level... always progressing more and more. If i only ever had to endure the t level i used to have..and just that level for the rest of my life... HA! peice of cake.. i'd welcome that with open arms and praise. I know i'll have this forever, and i know that i can live with it with where i am now... but it's hard to withhold your imagination from pondering what it'll be like in a couple years?

Sorry for venting, just goin through a tough time too.. i definately feel for you tman, and i'll pray for you. I really hope you get a good nights rest tonight man, you deserve it.

DrNagler
 #7 
Thatch posted [in part]:

The major thing that gets to me, that among all other things that just cuts through me and brings me down like no other.. is the progression. It's never plateaued.. never regressed to a previous level... always progressing more and more. If i only ever had to endure the t level i used to have..and just that level for the rest of my life... HA! peice of cake.. i'd welcome that with open arms and praise. I know i'll have this forever, and i know that i can live with it with where i am now... but it's hard to withhold your imagination from pondering what it'll be like in a couple years?

...........

Thatch, what is your tinnitus loudness match in dB?

smn
Tman
 #8 
Thanks, Thatch.  I am so sorry to read of your situation.  What caused your 't'? 

Thanks for those prayers.  They're going up for you to get better soon!
Thatch
 #9 
dunno what caused my t.. wasn't loud environments or any kind of trauma. I dont go to bars,  monster truck shows, concerts and rarely ever listened to music through headphones, and was low volume if i ever did. It just came one day. Was really quiet and just annoying... but its always climbed. I have 3 ENT's, and none of them have any ideas.. my MRI's have come clean and any med's they've thrown me on didnt do anything. I was just told to cope and by noise generators.

Dr.N, i don't know, all i know is that every hearing test i do i pass w/ flyin colors... but i imagine that the next one i do will be much different if this R ear hearing loss continues or progresses

DrNagler
 #10 
Thatch, if you don't know your tinnitus loudness in dB now ... and you didn't know it back when your tinnitus started ... how can you be so sure that it's getting worse? 

Maybe the strength of your tinnitus signal is the same, but over time the way your brain is processing that signal is changing.  (Which is what happens in the vast majority of cases wherein people are - just as you are - convinced that their tinnitus is getting worse.)

It makes a huge difference, you know.

smn
Murasaki53
 #11 
Just wondered if anyone has any ideas about how to combat insomnia that involves early waking (which seems to be a problem raised in this thread by two previous posters)?

I don't have too many problems drifting off to sleep but for the last 10 days I haven't managed more than 4 hours. Obviously, I can't keep this up as the job I do is particularly demanding.

Has anyone broken a pattern like this and if so how?
DrNagler
 #12 
Mura, what time do you normally get up out of bed in the morning to go to work?

smn


Murasaki53
 #13 

About 6.20 a.m.

DrNagler
 #14 
... and what time do you usually get out of bed on days when you do not have to go to work?

smn
Murasaki53
 #15 
About a couple of hours later. But I go to bed later as well on Saturdays.

DrNagler
 #16 
OK.  Here's what I think you should do.

There are two steps:

1)  Realize and fully accept that your body's internal regulatory mechanisms will insure that you will get adequate sleep if you follow Step #2 below.

2)  For the next two months force yourself to get up out of bed and start your day at the same time (6:20AM in your case) every single day regardless of whether or not you are working that day.  There should be absolutely no exceptions.  Do not permit yourself to nap at all.  Go to bed whenever you want to at night; the only requirements are that you physically start your day at the same time every day and that you do not allow yourself to nap.

It has taken a while for you to get into your current sleep pattern; it will take a few weeks to get out of it and the rest of the two months to "cement" a new pattern.

Sweet dreams! 

smn
painterdude
 #17 

Doc...that's great advice, now if you could make it that I don't have to wake up almost every nite once or twice to go to the bathroom, that'd be swell.  pd

Murasaki53
 #18 
Thanks for the advice Dr N. I'll give it a go.

One other thing: Laurence Mckenna seems to be quite keen on Mindfulness Based Cognitive Therapy. He's been carrying around that book you and I have on it. And in one of Kabat-Zinn's other books, an effect of practising mindfulness was to improve the early waking sleep pattern of one of the patients who followed the 8 week programme. So I'm going to give this programme a proper try and see what happens.


Thatch
 #19 

Dr. N

how can you be so sure that it's getting worse? 

Maybe the strength of your tinnitus signal is the same, but over time the way your brain is processing that signal is changing.  (Which is what happens in the vast majority of cases wherein people are - just as you are - convinced that their tinnitus is getting worse.)


You dont need that specific equipment at an ENT's office to measure it, yes they are extremely ideal, but not exclusive. I can measure it with regular daily activities and items: a coffee percolating, my car engine, my noise generator (lvl 3 used to drown out my t completely, now lvl 12 barely drowns it out), i have many fish tanks, and their filters and airation pumps used to drown it out, not any more. Yes the fancy machine could put a numerical value in dB, but there are other things i use on a daily basis that output the exact same dB volume since the beginning. but i've been habitualizing quite well over the past year.. if anything i've decreased my stress incredibly, overcome my depression and live easier. If anything my mind would be beginning to percieve it less. This my body, i've been with it for a long time, we know each other real well, and i know when theres an increase and just not a "perception" of an increase. Besides, the Rt ear hearing loss.. thats no perception that i think i hear less.. trust me, its less!

DrNagler
 #20 
Thatch posted:

trust me, its less!

..........

Well, I trust that you are convinced it's less.  Just like dozens upon dozens of my own patients who had "fluctuating tinnitus" that would "roar" on some days so loud that it would cover up most any sound and on other days would be relatively soft.  They were just as convinced as are you.  So I'd put them in an audiology booth on a "bad ear day" and then again on a "good ear day."  And with NO EXCEPTIONS, the dB level of the loudness match is identical.  In fact I have heard of only one instance among all of my colleagues who have done similar testing where the loudness match was not the same.

If you want to insist that you are the second exception, Thatch, be my guest.

...........

This my body, i've been with it for a long time,

...........

I understand, believe me.  Likely I've been with mine even longer.  Gonna be 60 years next month!

............

we know each other real well,

............

Yup.  I hear ya!

..............

and i know when theres an increase and just not a "perception" of an increase.

.............

Thatch, tinnitus IS a perception.  Maybe try to keep that in mind?

Best to ya!

smn

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