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Micky
 #21 

Hi SP,.. welcome back ..my goal as far as Neuromonics goes was to achieve the same results as reported on the Neuromonics web site.. ie.. hoping to lose over a period of time my adverse reaction and also to reduce the stress/anxiety, ..but most of all to reduce the voluum, which if you read the testemonials on their web site .. did happen to several patients ..sadly this did not happen, nor did it happen to a few of my friends on  this forum..i also contacted the Australian tinnitus acc.. and at the time the three patients they had had on their books using Neuromonics were all dissapointed, so of the six people i know including myself the results have been pretty poor ..thats a lot of wasted dollars ,..about 30 grands worth ..Micky ..

stringplayer
 #22 

Micky, I have not read the Neuromonics site in detail, but it seems to me from a quick look that the only result they claim to make is the following:

"The good news is that Neuromonics has developed a breakthrough treatment that can significantly reduce tinnitus awareness and disturbance for up to 90% of those clinical study subjects affected by tinnitus."

So I guess my first question would be whether or not you took any tests that in some way "scored" your tinnitus awareness and disturbance before starting ADP and then took again at the conclusion of treatment.  I ask because these things are so hard to assess retrospectively.

When I was in practice we gave a battery of tests prior to starting whatever treatment we felt was most appropriate and again at one year and 18 months.  Patients did not have access to their results from the previous tests while taking the next one.  What what striking was how greatly those who said that they were not improving ... were improving!  You see, in their hopes for even more improvement, they seemed to have largely forgotten how bad things were before they started.  I'm not saying that's the case with you, Micky.  It's just something I observed time and time again in during the five years I treated patients with severe tinnitus and hyperacusis

But in terms of a reduction in tinnitus volume, I do not see on the website where the company claims the product does that.  I can surely understand your disappointment in that particular regard, but it does not seem to me to be a failure of the product to accomplish what it claims to be able to accomplish.

sp

stringplayer
 #23 
I need to add something at this point in the interest of fairness and disclosure.  Many years ago - before there ever was a Neuromonics, Ltd. (founded in 2001) - in return for some consulting time I was given a few stock options in a company that as it turns out became a parent company of Neuromonics, Ltd.  The company for which I was given the options never went public and no longer exists.  Neuromonics, Ltd. - to the best of my knowledge - is privately held as well.  I have no relationship with Neuromonics, Ltd. and never have had a relationship with Neuromonics, Ltd.  But if Neuromonics, Ltd. does at some point go public, my understanding is that I stand to make a few dollars (VERY few).

And that is one of the reasons I have been and will continue to be neutral in terms of whether or not I "believe" in the product or would recommend it to anybody else.

sp
Micky
 #24 
SP said in part ..
But in terms of a reduction in tinnitus volume, I do not see on the website where the company claims the product does that.  I can surely understand your disappointment in that particular regard, but it does not seem to me to be a failure of the product to accomplish what it claims to be able to accomplish.
===============================
Sp ,.. as such the company probably does not claim a reduction in voluum is achievable, but the testimonials i read certainly did ! .., although i have not checked up on the very latest testimonials..its frustrating as i know what i read , and what i read was exciting at the time  ..with all the many hundreds of patients that are participating in Neuromonics in the  last year or more .. how come they never ever post on any of these forums to report back their progress...but they did say i would get my life back that 'I once took for granted in six months ' these words were printed on a large poster in the clinic window, of which i have a photo !! . Micky ...ps to be  honest SP for 5 grand i expected more .. took me many years to save that amount ..
stringplayer
 #25 
Micky posted:

Sp ,.. as such the company probably does not claim a reduction in voluum is achievable, but the testimonials i read certainly did ! .., although i have not checked up on the very latest testimonials..its frustrating as i know what i read , and what i read was exciting at the time

............

I'm sure it was exciting at the time.  I'm just trying to tease out what are and are not the actual claims of the company.  And I am trying to be objective about it, which is tough because I really feel for you.

............

..with all the many hundreds of patients that are participating in Neuromonics in the  last year or more .. how come they never ever post on any of these forums to report back their progress...

..............

I don't know, Micky.  Maybe the feel that they are done with tinnitus and want nothing to do with message boards?  I've really got no idea.

.............

but they did say i would get my life back that 'I once took for granted in six months ' these words were printed on a large poster in the clinic window, of which i have a photo !! .

...............

Is that a claim that the clinician makes?  Or is it an official claim of the company?  Again, I am trying not to take sides here.  But if the product did not deliver what the clinician said it would, unless the claim that you will "get your life back" is a Neuromonics claim, it seems to me that your beef should be with the clinician for misrepresenting to the public what the product he or she sells can do!

sp



Micky
 #26 
From Sp ..
Is that a claim that the clinician makes?  Or is it an official claim of the company?  Again, I am trying not to take sides here.  But if the product did not deliver what the clinician said it would, unless the claim that you will "get your life back" is a Neuromonics claim, it seems to me that your beef should be with the clinician for misrepresenting to the public what the product he or she sells can do!
===================================
Sp i would guess that this was unique to this particular clinic.. < the poster that is > ..dreamed up as a good advirtising slogan for their main window..well fair enough i suppose, but also misleading, but it's all spilt milk eh ..onward and upwards..Micky ..
stringplayer
 #27 
Micky posted:

Sp i would guess that this was unique to this particular clinic.. < the poster that is > ..dreamed up as a good advirtising slogan for their main window..well fair enough i suppose, but also misleading, but it's all spilt milk eh ..onward and upwards..Micky ..

..........

Well, in my opinion it's not all spilt milk.  At least not for the other folks who might read this board ... and not for you as you assess other potential treatments during your odyssey with tinnitus.

We are all here to learn from each other.

And what we have learned is that whether or not a particular treatment accomplishes what the company says it can accomplish goes a bit beyond what a potential customer can infer from testimonials and beyond the claims of a clinician in an advertisement that is not endorsed by the company.

I hate that this has happened to you Micky.

sp
Micky
 #28 

Ok,.. Sp , thanks for all your help ..we need to canvas some more posters to this site, hopefully they will arrive, as so far,.. it is a very readable board..if it all gets too busy for you in a few weeks time , maybe we could tempt Rob x2 ..Micky..

stringplayer
 #29 
Micky, I plan to devote around an hour a day here five out of seven days a week.  R2 will come along when he feels he is ready to rejoin the support world.  Right now he's dealing with other priorities, but I know he wants this board to succeed.  In fact, when I was away and had poor Internet access over this past weekend, R2 was kind enough to peek in a few times to make sure things were going smoothly.  If there was a problem, the plan was for him to call me on my cell phone, and I'd make my way to an Internet cafe.

So thanks, R2!

sp
pt
 #30 
The NM site talks a lot about "relief" without quite specifying what that means. My guess is that, for Micky (and also for me) "relief" means lower volume, as opposed to coping better with the same volume or even, God forbid, increased volume. Unfortunately, we may have no choice in the matter.
stringplayer
 #31 

Peach posted:

The NM site talks a lot about "relief" without quite specifying what that means.

............

I see that.

I guess the message is - regardless of the product or treatment protocol - when considering whether or not to go forward, it is of utmost important to have a clear understanding of what "success" is in the eyes of the company or clinician, how "success" is determined, and whether or not meeting the criteria for "success" is a goal that will satisfy your expectations and is worth the investment in time and money.  Moreover you want to know about the studies that demonstrate the product or protocol to be efficacious. 

Now this is not black and white stuff; the ultimate decision is a highly personal one - what might be reasonable for Mr. Smith might not be reasonable for Mr. Jones.  But at least you have a logical roadmap for going about making the decision for yourself.

sp

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