Originally Posted by toma5Alright then! I'll try to make it a clear as possible
do you have a ringing/roaring/cricket like sound (tinnitus)? I have 3 sounds: a low tone (fridge like), doesn't bother me much. A high-pitch whistling and the most annoying of all is the (what I call) white noise sound with the feeling that there is built up pressure in my ear (this sound is at 10 db).
left ear: yes and perfect right ear
Do you have hearing loss? yes. Sensoneural: around 15 db but especially conductive with an average of 25 db loss, although my low frequency loss has been measured as low as 60 db (I can't hear any heartbeat anymore when I put my ear on somebody's chest). The high frequency loss is around 30db.
low frequency loss suggestive of Meniere's. reason: A: no boney "shelf" in the lower pich area of the cochlea, so cochlear pressure effects to lower freq outer hair cells more
Do you have vertigo/off balance/dizziness? yes but not really when on Betahistine.
what triggers the balance problems : rolling over: a bit
which direction? always to the right
. looking up? yes terribly
A: suggestive of positional vertigo (BPPV)
standing up quickly? sometimes. But usually it is the feeling that the floor is getting soft or that my chair on which I'm sitting is suddenly going down. Usually, it feels that suddenly the wall is attacking me or the table comes suddenly dangerously close to me. I don't actually feel that I'm going. I happened to sit down in bed and have the feeling that it was a water bed (which it is not). I find it very difficult to squad, I have to hold myself.
A: NOT a positive sign for orthostatic hypotention: sudden blood pressure drop when standing .
do you have nausea with the episodes? I always feel nauseous and I have been feeling like that for years. I feel very nauseous when somebody bounces a ball in front of me, or when somebody passes me by when I read.
do you have vomiting with the episodes? No but I actually never vomit anyway.
do you have pressure/fullness in your ear(s)? Oh yes!!!!! I have tried to unblock my ear until I almost tore the eardrum.
A: aural pressure; VERY suggestive of Meniere's
Are you sensitive to light (photophobia): Yes but bright light has always given me migraines.
A: positve sign for migraine vestibullar disorder
do you have sensitivity to sound (phonophobia?): I hate noise I have to say and I could always hear sounds that most people couldn't hear
A: hyper acusis/misophonia,recruitment ( a Meniere's sign)
Do the symptoms fluxuate: hearing loss/vertigo/tinnitus? How long do the symptoms last? The vertigo (before betahistine) was usually during 3-6 days. The hearing loss seems to change a bit too but difficult to say. Tinnitus almost always bad but some days are nightmarish. Usually gets worse after lunch. I know that it sounds unreal but usually when I have vertigo my tinnitus is better and when my hearing loss seems better my tinnitus gets worse (????
A: hmmmmmmmmmmOther info I can give you: I had an ABR which showed some "post coclear damages not in relation to hearing loss". A: ???????????? For the past 20 years I've suffered with a terrible eczema in the left ear. The only thing I know is that because of the conductive hearing loss, no ENT at this stage was happy to give me any definitive diagnosis. So I you want to put your teeth into this and maybe come to some conclusion I'll be forever thankful to you.
A: overall impression: sounds very "Meniere's" like.Did they ever do an ENG/VNG test? electro cochleaography? MRI?Other tests for balance/vestibular disorders? As you can image: difficult to say for sure, particularly if further testing was not done. This is not meant to be a diagnosis, Hope this helps. cb