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johnny
 #1 

Can anyone offer an explaination for the feeling of fluid in the ear? I mean is it actually fluild or just the sensation? Dr's have'nt found anything but sometimes i get this feeling and some pressure. Its baffling to say the least!

DrNagler
 #2 
Johnny, have you undergone a tympanometry exam?

smn
johnny
 #3 
Hi and thanks for the reply.

I have taken this test and was told that my ear drums moved slowly. I did'nt think to ask why at the time. So I don't understand the results of that test.

I've always thought my T was caused by excessive noise but I've felt block sensation in my ears for quite a few years, and since my T started I get on and off pressure - today its very bad. However none of my Dr's can find wax or anything. When I get this 'pressure/blocked feeling' I also get a thick/sticky/full-feeling in my throat too! Sorry to be so graphic!

I have an MRA scan coming up soonish

Thoughts much appreciated

J
DrNagler
 #4 
Is the feeling of fluid in one ear or in both ears?

If it is in one ear, is it the ear with tinnitus?

smn
Maccy
 #5 
Hi Johnny,

I think we discussed this before didn't we because I wanted to know about the pressure and ear pain as well. Most of the replies were that it was a symtom of T and unfortunately nothing much to be done about it. I think mines worse when I have a cold so the tubes do have something to do with it. I must admit though, I haven't had the feeling for about 2 weeks now. Thank goodness so I'm hoping it has gone for good...who knows, it does what it wants.

Mandy
johnny
 #6 
"Is the feeling of fluid in one ear or in both ears?

If it is in one ear, is it the ear with tinnitus?

smn"

The T is in both ears and the 'fluid' thing seems to come and go at random, and can be in either ear. My T is often louder during these bouts too. I thought it might have been in response to certain sounds/frequencies but I can't tell. It came on really stong 2 days after a storm a while back, and again 2 days after being in a (fairly) noisey bar. So I thought there might be a pattern. Could this be a mild form of Hyperacusis? Sometimes they feel kind of 'tight' inside... its hard to explain. Its a horrible combination of blockedness/tightness/aching/popping/pressure/and very occasional fluid movement. I can tilt my head and feel the movement!?!?! Very rarely the've felt hot to touch when they've felt like this. I also feel pressure under my lobes by my jaw too, and I get more popping when I speak.

Well today I got these feelings (fluid thing with blockness) directly after listening to music an a computer at work. It was'nt loud but It did seem not to agree with me, and they've felt really 'full' and got worse since then. Sorry if I'm rambling on at this point, but its really bothering me!

I've done my best to avoid excessive noise, often walking away from certain noises in public. But I've tried not to let myself get paranoid over it.

These feelings haven't really let up since my T started 6ish months ago but some days are worse than others.

I've tried nasel sprays and drops. Was told it could be eustation T dysfunction but I'm not totally convinced. I can breath ok.
Oh well, the mystery continues...


Hi Mandy, yes I do remember this discussion but it never reached a conclusion. I'm interested in seeing a Nureo otoligist at some point, as I've heard that they know lots about this stuff. I'm waiting for a MRA scan at the moment because my MRI showed something (not sure what) so something might come up after that. Everythings so slow on the nhs! Fortuantely my T has improved slightly and I mostly hear it in silence now - its not as percing as it was in the start.

How are you by the way? Its good to hear you've had some improvement sice we last spoke. Has your T noise reduced?
DrNagler
 #7 
Johnny, without testing and examining you obviously my opinion on this issue isn't worth a hill of beans.  But since you asked, my guess is that what you sense as some fluid or fullness in your ear is actually a temporary threshold shift in your hearing.  In other words, you feel that the fluid/fullness interferes with your hearing when in reality your hearing thresholds are temporarily shifting, which gives you the feeling of fluid/fullness.

But again - it's just a guess.

smn
pt
 #8 
Johnny, I too have had a very occasional feeling of fluid. It feels that both ears have water gushing out of them. As far as I can tell, this is yet another very bizarre symptom following acoustic trauma. I have heard others describe a feeling of wetness in their ears, or carbonation, which I think is the same feeling. I think that there are so many odd sensations that include pain, pressure, fullness, aching, blockage, etc, etc, and that they are all the result of acoustic trauma. There seems to be no explanation for this.
Maccy
 #9 
Hi Johnny, is your T from noise injury? or acoustic trauma as PT put it? I know I don't fall into that catogory as mine was brought on by stress after an operation.

In reply to your kind question to me...yes I am feeling so much better. When the board closed for a while I didn't know how I was going to be each day but I've been fine. My T has subsided to a Hissing sound (a bit like the steam coming from a pressure cooker!!). It's there all the time but I am learning not to focus on it. I can go a few hours without hearing it at all. I am feeling more positive in myself (thanks to the antidepreassants I think) but who cares? if they are helping me cope better with the T then I'll stay on them as long as necessary.

I don't need anything to help me fall asleep anymore (at the moment anyway) I was using a Hypnotherapy tape or rain sounds and I don't need these at night time now so thats a big improvement.

Yes I wish it would just shut up and go away but I'm learning that it doesn't have to rule my life. I am in control once again!!!

Cheers
Mandy


johnny
 #10 
"Hi Johnny, is your T from noise injury? or acoustic trauma as PT put it?"

Good question. Well I thought acoustic trauma was injury from something extremely loud, ie an explosion and included hearing loss. So i don't think so.
I don't have hearing loss according to 2 audiograms. My hearing is within normal range. It dips very slightly in places but no more than 10db.

But, I did have ringing in my ears directly after doing some home recording through headphones. I was'nt aware at the time but must have had the volume up too loud! It was'nt uncomfortable but I must have over done it looking back. Its the first time a had this sorting ringing at home. I had it in the past from gigs and nightclubs etc but it always went away. This is when I first noticed it so It could have been the start of my permanent T.

A few days after this incident I had vertigo, and cronic pressure! I took stemitel for this but I didn't notice any changes.
A couple of weeks later I started getting really bad ear ache, fluid sensations, stabbing pains, tightness, popping, sensitivity too sudden sound etc. I often felt weird pressure changes, and could almost 'feel' the tinnitus activity inside my head - passing from one side to the next!! Does that sound odd?
The dizzy spells went after 2 weeks but I'm still left with th T and blockedness. My sensivity to sound has improved greatly over the last couple of months though, and so has my T - its 'evened' out more - become more bareable anyway.

As i mentioned before though, I have had blocked feelings in the past but never as bad as now, so I do have a history of mild ear problems. I had them syringed twice in my childhood from infections.

So, I guess I might have a noise injury of sorts but without the hearing loss!??!!??

I wonder if I'll ever get a proper diagnosis? I've documented all my symptoms.

Cheers for all the comments



pt
 #11 
Johnny, I also do not have hearing loss. I don't know that there is a better descriptor of our problems than "acoustic trauma" which to me is synonymous with "noise injury."

I think such trauma/injury can come from a sudden impulse noise like an explosion, but can also result from noise that is of less loudness but greater duration. I think these ear problems lead to such peculiar and always-changing symptoms that any attempt to separate the symptoms and figure out what each one is and each one means is doomed to failure. I'm not sure any doctor or neuro-otologist will be able to give you any further information. The mystery does indeed continue. I don't expect it to be solved in my lifetime.
johnny
 #12 
I guessed as much. Perhaps I'm wasting my time looking for answers. I just wish I'd known more about the risks 6 months ago. People seem to bang on about hearing loss but not so much about the 'living hell' thats the rest!

I've spent less time around noise than anybody else I know and yet (it seems) as if I'm stuck with this!!

How long have you suffered from your noise injury? Are your symtoms like mine? Have they improved over time?

I listened to music again at work at the same volume as the day before (you must think I'm nuts) with no change or discomfort so I might rule out 'H'.
Next...


johnny
 #13 
Its all suddenly caught up with me!!!

My ears are f**ked and stress alone has dramaticaly reduced my chance of recovery, cells and nerves repairing blah, blah...

cheers anyway
DrNagler
 #14 
Johnny, you have now vented.  Fine.  I'm glad you did it.  Because it's good to get things off your chest.

The question is - what are you going to do about it?  Because with all due respect (and I mean this sincerely), if all you are prepared to do is vent, this may not be the right board for you.

So, Johnny, what are your short-term and long-term goals ... and what is your plan of action?  (Maybe some other participants can help here once Johnny responds?)

sp
pt
 #15 
Johnny, I also was injured by noise that others seem to easily withstand. I was exposed to very loud ventilation noise in the workplace. This was a year ago summer. Others there are having threshold shift and aural fullness, but nobody else seems to be as affected as myself. I had excruciating, burning, stabbing pain in my ear canals that lasted almost 9 months. Now the pain is almost but not quite gone. I was exhausted and felt like crap, like I had the flu, for an entire year. I had hyperacusis so severe that even running water was on the edge of painful. My tinnitus has settled mostly in one ear, but is getting softer and lower. My symptoms have improved vastly.

You wrote:
"I listened to music again at work at the same volume as the day before (you must think I'm nuts) with no change or discomfort so I might rule out 'H'." I don't think you are nuts but I think you are too cavalier. This can get worse. I think it is easy to be lulled into a false sense of security if you are feeling okay for a few days. In the workplace, I began wearing earplugs and I thought that would help but it didn't. My feeling is that ears after a noise injury are quite vulnerable for a while, so if you continue to listen to music at the same volume as before, you are playing with fire.


johnny
 #16 
"Johnny, you have now vented.  Fine.  I'm glad you did it.  Because it's good to get things off your chest."

Really sorry about that. Its just got on top of me, you know? Lack of sleep, trying to get on with life, hold down a job, and still be fun in a relationship. All I really want is to get better. My 'goal' is to FEEL better physically - I've tried all the mind-over-matter stuff - and come full circle

I've tried so much stuff in the last 6 months! You name it - ive done it. Yoga, herbal tea, relaxation stuff, pills, walking, meditation, films - the list goes on.

I think its beating me slowly. Sorry to be so negetive - perhaps this board isn't for me? Thats not because it isn't a good board by the way - because it is.
DrNagler
 #17 
Johnny posted:

My 'goal' is to FEEL better physically - I've tried all the mind-over-matter stuff - and come full circle

...........

Good goal.  I like that.

So what "mind-over-matter stuff" have you tried?

smn
Maccy
 #18 
Johnny,

you WILL get there. I know it's really hard. I was so despondant and down but right now I feel fine. I feel it's all about taking control. It really is a MIND thing. Don't discount the mind over matter stuff because it does come down to that really.

I had to go on the antidepressants to change my mood. Maybe thats something you could consider if you haven't already. I know its not everyone's ideal but for me I can honestly say they've helped. Because they've stopped me feeling so low, the anxiety has reduced and I am able to view the T in a more positive and objective manner. That in itself is a small miracle because I've gone from this weeping mess of a person to someone who I used to be before.(would liked to have been a much slimmer someone but we can't have everything ha!!)

I really hope we can help you with positive comments, but I found out that the only person who can do it is yourself.

Take care
Mandy
johnny
 #19 
PT said:

"Johnny, I also was injured by noise that others seem to easily withstand. I was exposed to very loud ventilation noise in the workplace. This was a year ago summer. Others there are having threshold shift and aural fullness, but nobody else seems to be as affected as myself. I had excruciating, burning, stabbing pain in my ear canals that lasted almost 9 months. Now the pain is almost but not quite gone. I was exhausted and felt like crap, like I had the flu, for an entire year. I had hyperacusis so severe that even running water was on the edge of painful. My tinnitus has settled mostly in one ear, but is getting softer and lower. My symptoms have improved vastly.

You wrote:
"I listened to music again at work at the same volume as the day before (you must think I'm nuts) with no change or discomfort so I might rule out 'H'." I don't think you are nuts but I think you are too cavalier. This can get worse. I think it is easy to be lulled into a false sense of security if you are feeling okay for a few days. In the workplace, I began wearing earplugs and I thought that would help but it didn't. My feeling is that ears after a noise injury are quite vulnerable for a while, so if you continue to listen to music at the same volume as before, you are playing with fire."

I've taken these comments on board. I've basically been avoiding loud noise since april this year. So when I say I listen to music at work its pretty low. Its really good to hear that one can improve over time, so hopefully It will happen to me. My symtoms are very similar to yours. Your story has given me some hope.

SMN wrote:
"So what "mind-over-matter stuff" have you tried?"

The usual stuff i suppose like:

Its not going to kill me
I'm not alone
I'm not deaf
It's just a noise
Everyones hears T if they listen for it
And so on...

MAndy wrote:

"Johnny,

you WILL get there. I know it's really hard. I was so despondant and down but right now I feel fine. I feel it's all about taking control. It really is a MIND thing. Don't discount the mind over matter stuff because it does come down to that really.

I had to go on the antidepressants to change my mood. Maybe thats something you could consider if you haven't already. I know its not everyone's ideal but for me I can honestly say they've helped. Because they've stopped me feeling so low, the anxiety has reduced and I am able to view the T in a more positive and objective manner. That in itself is a small miracle because I've gone from this weeping mess of a person to someone who I used to be before.(would liked to have been a much slimmer someone but we can't have everything ha!!)

I really hope we can help you with positive comments, but I found out that the only person who can do it is yourself.

Take care
Mandy"

Hi Mandy, thanks for your encouragement. I thought I was losing it but I think I'm taking control again. I'm on Fluoxetine and thats helped me so far. I was a complete wreck before. I'm on Zopiclone too - but I only take them when I reall need them.

Cheers for your support everyone



Maccy
 #20 
Hi Johnny,

well I need to take a leaf out of my own book today! I had such a bad time last night. A new and very loud noise appeared in my other ear and head and it was really troublesome. I've hardly slept and today, although the noise has gone (from that ear anyway!) it's left me feeling pretty rough. Lack of sleep and a major anxiety attack hasn't helped. Got a very busy day ahead of me but all I feel like doing is crawling into bed and having a good cry. I was doing so well I feel a though I've just been kicked to the bottom of the heap again. I need to keep thinking I got there before, I'll do it again....but it is really hard when I feel so rubbish.

Mandy
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