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frg
 #1 
Hi SP,

I've greatly appreciated your input over the years on these boards and am glad you are still contributing.

I've had tinnitus for 15 years now, and have only had to deal with a few permanent spikes since that time.  Recently, I've been experiencing another dreadful spike but am doing my best to stay hopeful that I will habituate and not let it disrupt my life or energies.  Because of the recent spike, I've (again) been considering TRT to help me gain control of my reaction to this condition. 

My question is, then, how does a TRT practitioner address spikes or new head noises?  Are the sound generator's adjusted? 

I hope this question doesn't sound too ignorant, especially because I'm not new to this condition.
selahpraise
 #2 
Thanks for asking that.  I'd like to know also.  sp's got his work cut out for him when he returns.

Selah

stringplayer
 #3 

I'm at the airport waiting to board a flight back home - and I'm finally able to get a decent Internet connection.  Got just a few minutes.  So ...

Frg posted:

Hi SP,

I've greatly appreciated your input over the years on these boards and am glad you are still contributing.


............

You are welcome. 

When I was in the midst of my own suffering and desperation, I sorta made a deal with God that if He could somehow point the way for me, I would do my level best to point the way for others.  My role has not always been perceived by some in a positive light, and I have never claimed to be perfect.  But, that's why I'm still here - my promise to God.

And in fulfilling that promise, I have found a great deal of satisfaction.

...........

I've had tinnitus for 15 years now, and have only had to deal with a few permanent spikes since that time.  Recently, I've been experiencing another dreadful spike but am doing my best to stay hopeful that I will habituate and not let it disrupt my life or energies.  Because of the recent spike, I've (again) been considering TRT to help me gain control of my reaction to this condition. 

My question is, then, how does a TRT practitioner address spikes or new head noises?  Are the sound generator's adjusted?


..............

In TRT wearable broad band sound generators are sometimes (not always) used to supply the "sound therapy" component of the treatment.  In such cases when folks are in the midst of "spikes," the instructions for setting the devices are the same as if there were no spike.  The devices are set once a day - in the morning.  They are not readjusted during the day.  They are set at or below the "mixing point" provided that the volume is not so loud that the devices themselves are uncomfortably loud.  You set the device in the worst ear first (if there is a worst ear), and then set the volume in the other device to be as loud (by hearing) as the volume in the first device.  (You do not look for the "mixing point" with the second device.  If the devices together actually mask the tinnitus, turn them both down a little.  If the devices together produce sound at an uncomfortable volume, turn them down a little.

I think it is important in TRT to look at the long term goal, which is facilitation of habituation.  The devices in some cases might in some cases provide a bit of short term relief, but that is not their intent.

...........
 
I hope this question doesn't sound too ignorant, especially because I'm not new to this condition.

...........

It's a very good question, in my opinion.  Thanks for asking it.

sp

[I'm off to catch my flight and will try to get to the other threads within the next couple of days.  Thanks to all for your participation and patience.]


selahpraise
 #4 
sp,

Could a trained sound technician (one who does this in the music world for a living) with proper instruction and using an ipod type device recreate the situation that you are describing above.  Sort of a poor man's therapy.

Almost scared to ask because it is probably not possible or people would be doing it. My son-in-law (the techie) has been asking how he might help me.  He is working with a doctor who is experimenting using sound to treat ADD and ADHD.

SelahPraise





stringplayer
 #5 
Selah, an iPod-type device would not work, because TRT requires "open molds," and iPod earbuds don't fill the bill.  Then there's the directive counseling component of TRT, which is to my way of thinking more important than the sound therapy component.  Not sure that a sound technician could quite fill the bill there.

In truth I suppose that there are many possible shortuts.  Some may even be better than TRT for all I know.  But a failure of a shortcut should not ever be construed as a failure of TRT.

sp
Micky
 #6 
Sp said in part ..
Selah, an iPod-type device would not work, because TRT requires "open molds," and iPod earbuds don't fuill the bill.
-----------------------------------------------------------
Sp forgive me if i'm wrong here but surely open moulds are the one's  that incorporate a hearing aid ? .. certainly the WNG.s iv'e seen are in fact like small ear buds, and are mearly inserted inside the ear canal and then adjusted ..maybe i have the wrong end of the stick and you are refering to higher tech devices ..Micky ..
stringplayer
 #7 
Micky posted:

Sp forgive me if i'm wrong here but surely open moulds are the one's  that incorporate a hearing aid ? .. certainly the WNG.s iv'e seen are in fact like small ear buds, and are mearly inserted inside the ear canal and then adjusted ..maybe i have the wrong end of the stick and you are refering to higher tech devices ..Micky ..

............

The only wearable broad band sound generators (what you are calling "WNG's") that are approved for use in TRT do not occlude the ear canal.  They sit just inside or behind the helix (the part of the ear you can grab with your fingers) and at most have a very small tube that extends to or near the opening of the ear canal.

sp 
Micky
 #8 

Mmm well maybe things are different in the USA, but i do have a couple of WNG.s that are shaped and slide into the ear canal, and are then adjusted to mix with the tinnitus they look very much like  a hearing aid ..Micky ..

stringplayer
 #9 
Micky posted:

Mmm well maybe things are different in the USA, but i do have a couple of WNG.s that are shaped and slide into the ear canal, and are then adjusted to mix with the tinnitus they look very much like  a hearing aid ..Micky ..

...........

Micky, the old tinnitus maskers used to look like hearing aids and had a adjustable volume setting.  But whether it's in the UK or the US, they are not appropriate for use in TRT, which I think might be what we are talking about.  Why don't you take a digital photo of these devices and either post it or e-mail it to me at sp@sptinnitus.com - and I'll have a better idea of what you are talking about.  Were these devices recommended to you specifically for use in TRT?

sp
Micky
 #10 

Sp,.. im yet to treat myself to a digital camera !!..but am quite sure you are correct.. these units which i have do produce adjustable white noise, but as you say are not the real deal , and probably are little more than a masker !! the units were supplied on our national health system, after seeing an audiologist for a hearing test ..so what is the main difference between the unit you are talking of and the one's i have..as they do both produce white adjustable noise ..i expect as you say with your version the ear canal is open to external sound .. if this is the case, would it make that much difference ? ..Micky ..

stringplayer
 #11 
Micky posted:

i expect as you say with your version the ear canal is open to external sound .. if this is the case, would it make that much difference ?

............

It depends on what you are using them for, Micky.

According to Dr. Jastreboff in TRT the answer is unequivocally yes.

But if you are using them as maskers, the answer is no.

sp
selahpraise
 #12 
I understand what you are saying, sp.  It was just a thought.  Sometimes there is just no way to circumvent the real deal.

Selah

stringplayer
 #13 
Selah posted:

Sometimes there is just no way to circumvent the real deal.

............

Problem's even deeper than that sometimes.  For instance, how do we know if something really is the "real deal?"

sp
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